THANK YOU FOR VISITING JORDYN'S JOURNEY WEBSITE!
This website has been created to allow people to learn more about Jordyn and the condition(s) that she is living with....Fibrodysplsia Ossificans Progressiva.. as well as to update on any information about her health and any upcoming events..
To register for the upcoming Mom's Day 5K Trail Race for Jordyn's Journey please click RACE
Mom's Day 5K Trail Race for...Jordyn's Journey
"Colored Locks & Crazy Socks"...in honor of Jordyn and her mom!
Join us BEFORE the race to add a little color to your hair with a hair extension or colored hair spray in honor of Jordyn!
Complete your look by wearing your favorite "CRAZY SOCKS"! Don't own any? No worries...there will be Crazy Socks to purchase prior to the race.
Be sure to stay with us after the Race for Food, Fun & Entertainment...
* Brunch ~ by donation
* Raffles ~ Lots of great Raffle Baskets/Prizes
* Live Music By BRANDON PRATT
* "Create a Card" for Moms or the "Mom" in your life
* Gifts for purchase and more...
Jordyn's Journey cause was created shortly after "Jordyn's Walk" walk-a-thon fundraiser in November 2011. Following the fundraiser Jordyn's community and beyond continued to reach out to her by sending monitory donations, sharing her story with others, spreading awareness about FOP or simply praying for her as she travels into this journey of unknowns...
As her body progresses, her medical expenses rise. Her family presently does not have any medical coverage and as with any disease there are significant costs that are involved to care for Jordyn that the family cannot financially cover at this time.
Our first goal is to spread awareness about FOP so that others like Jordyn do not go misdiagnosed as Jordyn did for NINE YEARS! Additionally "Jordyn's Walk" will become an annual fundraiser that will continue to support Jordyn so that her family can have the financial means to care for her in the capacity that she requires and deserves.
Also a "Gifts of Love" project is in the planning stages...Jordyn and her family would like to give back not only to the community in which they live, but also to others in the FOP community either living with FOP or loving and caring for someone who has FOP...more details to come...